Archive for Diabetes hope

A Time For Reflection

Devoted readers,

I apologise forthwith for the lack of updating of this page, but my life, as Kate and Lance’s, has been filled to brimming with events and occurrences. My dearest nephew has been in horrible pain, and Kate is trying to cope on little sleep and a life almost devoted to D and PN.

Please, send your wishes on to them, and pray that relief will soon be at hand.

I want to reflect back on what has been a trying time for Kate and Lance. Their tireless work throughout this year to prove to doctors that PN can exist in a young child has resulting in help from many of you, for which I thank you all. I will shortly write a more detailed post, when I am not knee-deep in Carbon Nanotubes and trying to sort out plagiarising students.

We hope for a cure to come swiftly to aid all of us, and hope for the best for Kate and Lance.

Comments (1) »

A rant on modern medicine

I’m sorry I’ve been a little slack in keeping everyone up to date here on Kate and Lance’s blog, but I’ve been a little caught up in a few other things and have just found some time to sit down.

Things have not been going well for my sister-in-law in the north. She and Lance have been racing around trying to find an answer… any answer for Lance’s pain, which no doctor seems willing to believe is Peripheral Neuropathy. It’s at times like this we wish that modern medicine would stop thinking that every person fits into the categories written about in their textbooks.

Life is not identical for each of us. We are not exposed to exactly the same conditions as any other person every day, and even then our bodies respond to things differently. Allergies and intolerances are a prime example of this, and the varying degrees people may be afflicted with such debilitating illnesses as Diabetes, Chronic Fatigue Syndrome, and Fibromyalgia, as well as even things such as stress, anxiety, and depression, means that no doctor can just look in a book, point to a word and say “You have this!”.

It is imperative that Western Medicine remembers to think laterally and logically, combine all factors, and think about the exact conditions that the person is presenting with. If a child is crying every night and requiring 24 hour care to try to ease his pain; if a child can’t feel a pin being forced into his foot; if a child has continual burning sensations in his legs, then that child is probably not making it up and attention seeking.

As you can tell, I am seething from the news Kate has been telling me. It is disgraceful and disgusting some of the medical advice she has been given, including “just ignore it”, “it’s growing pains”, and “it can’t be neuropathy, he’s too young”.

It is good advice for all persons to remember, don’t just take your doctor’s word each time. Ask for a second opinion if you don’t believe what they’ve said is the case. Go to another doctor in your town, or, if you have to, travel. Find out who is the best person for your symptoms who might be able to help, and demand to see them. Do not just accept defeat and that you’ll just have to put up with anything.

Be bold, be strong, and be well.

Janek xx

Comments (1) »

Exciting News

Guest Post by Janek!

Progress is always slow coming. We have been waiting for so long to find a cure for Diabetes, in any form.

Today, another step has been taken: Student’s Insulin Discovery

No, it isn’t a cure, but as science begins to understand how insulin works. And with discoveries like this, science can continue to work on both treatment and towards a cure. Now, more than ever, is a time to consider your donations to JDRF; and Diabetes Australia. If we can fund more research, we can find that cure!

Also, don’t forget November 14 is World Diabetes Day. That’s two days before my birthday. Impressive, no?

Leave a comment »

Suffer The Little Children…

I’m a little annoyed.

Maybe it’s all the shenanigans regarding governments and elections of recent times…It’s just made me recall all of the promises and deals that were made relating to an Insulin Pump Scheme that would be applicable for children with IDDM up to 18 years of age before the 2007 election.  

I was first contacted by JDRF Head Office last year, before our Federal Election. A small group of parents and I were asked to contact Mr Howard. Others were pleading with our Members of Parliament to take into consideration how many children with diabetes don’t have insulin pumps, and how desperately they needed them.

On International Diabetes Day,2007, Mr Howard historically announced that, if re-elected, he would provide $22 million to JDRF, to ensure that many children, and especially the ones who truly needed a pump, got one.

Despite our inital frenzy, at this stage, Mr Howard was lagging in the polls, so Kevin Rudd and team were our next target.

We rang Labor party hotlines, we wrote to Kevin personally, we even joined his Facebook Page. JDRF Youth Ambassadors followed him around and spoke of their need for an insulin pump program to combat their ailing health.

He knew that this was something that advocates and JDRF expected him to at least match, or maybe supercede the amount promised by Mister Howard.

So, Kevin Rudd became our new Prime Minister, and we said goodbye to our 22 million dollar promise.

Nothing was mentioned about Health, nor Childhood Diabetes in his victory speeches. I was silently worried.

He made grandiose promises to amend the public hospital debacles, and even establish doctor’s surgeries replaced by state-of-the-art medical centres, where you could see your doctor, as well as have all of your blood work, x rays, physio and dentistry taken care of in the same complex.

Australia nodded and agreed wholeheartedly. This was a man who cared for the little Aussie battlers.

However, in that election promise, there was no mention of a insulin pump grant.

In the meantime, Lance’s health took a turn for the worse. His endocrinologist spoke to me about the possiblity of getting an insulin pump.  When I bought up the possibility of obtaining one through the Insulin Pump Grant, he raised his eyebrows, stopped writing frantically, and shook his head. Hot, angry tears spilt down my face.

I began looking around and finally settled on a Medtronic pump.

The rep, Louise, and I gained a fantastic rapport. 

.                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                      totally  I really loved the way she communicated with me and understood how desperately a pump would be beneficial for Lance. I mentioned the insulin pump grant to her. She grimaced, and said something along the lines of, “If it does happen, it won’t be for years, and it wouldn’t be anywhere near the amount promised by Howard.” I sighed, disheartened, and continued listening.

 I put DAYS into writing letters to different influential people-some responded, but it all depended on the upcoming election. As soon as we knew that the Labor party were victorious, I began furiously writing to various Health Ministers, Members of Parliament, and King Pin himself, without one reply.

Suffer the little children..."

Suffer the little children...

Just before our annual budget was released in May, our very good friend, Gareth Eldershaw, (Gareth completed an interview for www.whydidtheinsulindie.com earlier this year), wrote to Arch Bevis,Federal Member for the Seat of Brisbane.

This is what Arch wrote in his comments regarding the budget results.

Firstly, he made reference to the letter that Gareth had written to him, complete with Jelly Baby Lapel Pin. (Budget night happens to coincide with Jelly Baby Month, so we make it a point that each MP is sent a pin and request that they wear it on their lapel on the night that has the Nation at a standstill.)

“May is a special month for JDRF as we try to make the community more aware of Type 1. As you know the jelly baby is a sort of motto that represents a vital aid to help us recover from a “hypo” when our glucose levels are too low. There’s a little blue guy in the envelope that I’d like to give you and ask you to wear in May and especially on Budget night.”

I can tell Gareth that I am wearing his little blue guy on my lapel, as I did last night during the budget. Gareth went on..

” We talked about the grant to fund the reimbursement of insulin pumps for kids under the age of 18. 3000 pumps for all these kids (over a 5-year period) would cost $35m. It’s a lot of money I know, but you know how much it will save the government in the future? Of course it will make life a bit more bearable (and safe too) if kids can use insulin pumps.”

I was very pleased to have been able to ring Gareth up today and say that in last night’s budget we made a step in that direction. I do not pretend that we have gone as far as we need to. I want to see the opportunity to benefit from an insulin pump—and not everybody with diabetes is suited to an insulin pump—be made available to all. But I do applaud the Minister for Health and Ageing, Nicola Roxon, for her efforts in recent times in ensuring that the budget includes a provision that will see about 700 young Australians gain access to an insulin pump. I look forward to continuing to work inside government now rather than from the opposition benches to try to have that program extended.

The grand result?? JDRF were given $5.5 million, to be dispensed over three years, to provide insulin pumps for 700 children.

After much planning and deliberating, JDRF will begin accepting applications for contributions towards the purchase of an insulin pump. It will be based on a financial means test, and the most that can be received per child is $2500. Families without health insurance can begin applying for insulin pumps for their children in November.

So, with the average insulin pump costing $6000, (notice, I say average ), and with approximately 1.7 million dollars provided each year, it won’t take long before all of the money is dispensed. If you are a suitable candidate for the $2500, what happens then? How do you get the rest of the money? Fundraising is about the only real option,and we all know how difficult that is.

I’m really not trying to look a gift horse in the mouth.

I’m so grateful that we were acknowledged at all, the heart and soul of some 50 parents went into sharing their children’s private stories regarding life without an insulin pump. I’m sure PLENTY of other charities tried their hardest to get a financial boost without succeeding, so I really don’t want to appear like I’m complaining or ungrateful.

I guess it just smarts a little that we could have had 22 million dollars.

It hurts to think that some families will qualify for the $2500, but will be totally stuck when it comes to raising the rest. Not to mention those who receive $750-I mean, what happens there?

  • Knowing JDRF Australia, they may have some amazing fund raising venture up their sleeve, but in all truthfulness, does it leave families any better off than before this money was offered? Personally, if I hadn’t have paid for Lance’s pump outright, and I knew that there was NO way I could afford to pay for the outstanding amount, I think (and only if Lance’s health was in excellent shape), that I would forfeit the opportunity. JDRF staff are going to have to make some really difficult decisions without being biased to families they know well and adore.

 Vote for whomever will give you a better Health Care System, America!

Leave a comment »

Thank You, Squidoo!!

Ten days ahead of schedule, Squidoo have already fulfilled their promise of an $80 000 cash giveaway to many worthy organisations! 

Five percent of the overall votes went to the Juvenile Diabetes Research Foundation, with each vote earning a $2 donation from the amazing team at Squidoo.

Considering that the voting closed so early, approximately $4250 is certainly a tremendous effort!!

(Exact amounts to be donated will be published on the Squidoo website when the final counting is completed.)

Good Job, Everybody!!!

Good Job, Everybody!!!

Considering that Lance and I sell jellybabies each year for $2 per unit, I can assure you that achieving anywhere close to a four digit number in a two week period is a mammoth accomplishment.

Just through word of mouth, an email here, a post-on-a-blog there…..WE ALL DID JDRF PROUD.

Oh, by the way, you CAN continue voting over at Squidoo if you are at all interested in how much we could have raised by 15 October, (for bragging rights only.)

On behalf of JDRF (Australia), THANK YOU SO MUCH, Squidoo, for your incredibly kind offer, that touched so many different charities and in some way, big or small, made a difference.

(Squidoo have always been exceptional supporters to Type 1 Diabetes by providing much needed funding for cutting edge research.) 

 To all who voted, you already know that you are smokin’ hot!

Leave a comment »

We Need Your Vote!

Our friend, Cory sent me a fantastic email today. 🙂

 Squidoo, an online organisation that provides phenomenal financial support to charities, are offering a

$80 000 giveaway to many worthy organisations, JDRF INCLUDED!

I am using this post to ask you to help Squidoo, “show us the money!”

You have the power-simply by clicking on Juvenile Diabetes Research FundSquidoo will donate $2 on your behalf!

The most exciting part of the Squidoo Offer, is that JDRF are in the running for an $80 000 donation, if enough people get behind this incredible gesture and VOTE.

Please bare in mind, that the rules do stipulate that you may only vote ONCE-if you do vote more than once, your valuable vote will be deleted.

Do you have a blog? Or a long list of contacts who would love to get involved with helping kids like Lance?

 You can help out AGAIN!

Simply send the Squidoo link to your friends, and ask them to participate! You don’t have to join up or provide any personal details, it’s just a matter of ticking the box marked, “Juvenile Diabetes Research Fund.”

(Technically, JDRF stands for Juvenile Diabetes Research Foundation, not fund, as listed, but hey, when this amazing opportunity is presented, and we score $2 a pop per vote, I’m certainly not going to quibble!)

The closing date for this offer is 15 October-if you can get ten of your friends to vote, you’ve just contributed $20 (thanks Squidoo!!)to the JDRF!

Cory has things covered in America, putting in every effort to make people aware of this fantastic fundraising opportunity. It would be a real honour, on behalf of Lance, and everyone affiliated with  Australia’s JDRF, if you could take a few seconds to “donate” $2, AND increase the overall total. 

It’s an extremely rare opportunity to be offered such a simple way to raise funds for one of our favourite charities who do so much for families and children, living with type 1 diabetes.

PLEASE VOTE!!!

Comments (1) »

We, The Unidentified.

Bravo, JDRF Australia!

THANK YOU for showing us the facts on paper. 🙂  Your team conducted a broad scale survey about what it’s REALLY like to live with Type 1 Diabetes, and you came up with some staggering results. 

Considering that Australia is the most obese nation in the world, and there has been millions of dollars poured into advertising for weight loss,( with the fearful threat intertwined of becoming a “hearty” candidate for type 2 Diabetes), it appears that all of the amazing advocacy work that we thought was leading us to finally establishing an identity of out own has lead us back to sqare one.

JDRF said that from the 2300 respondents (which was aimed at all age groups-adults with type 1 diabetes, parents with a child/children with type 1 diabetes and other people with a personal connection to type 1 diabetes-family, friends, co-workers, sent a very strong message that the current focus on obesity in discussions of diabetes had created a “blame culture”, which in turn causes misery and depair for families living with Type 1 Diabetes, as reported in “Update“-The Official Newsletter of JDRF Australia.

THE FINDINGS.

ADULTS living with Type 1 Diabetes reported a common complication that accompanied their condition-depression and anxiety, with 25% reporting a clinical diagnosis during their time living with diabetes.

Even more concerning were results indicating that this debilitating condition was not being managed as well as possible by health care professionals, with only 7% of respondents declaring that they had been referred for psychological support.

Heartbreakingly, depression or anxiety was ALSO the most commonly reported complication for children with type 1 diabetes, with a staggering 1 in 10 declaring this dreaded complication.

(Reassuringly, all of the candidates had been referred to a psychologist or other specialty care.)

THE HEALTH SYSTEM.

Agasp… MORE than 50% of adults and 40% of parents reported that they had experienced a Health Care Professional demonstrating a blatant lack of knowledge about type 1 diabetes.

(I shuddered as I read this statement in particular, recalling a registrar in hospital, neglecting to read the nurses’ notes, and almost overdosing Lance with a double dose of Novorapid. 30 minutes later, I discharged Lance from the hospital, fully aware of the risk I was taking-however, as his fulltime carer, I felt he was at more risk in that ward than he was in his own cosy nest at home. Hate to say, ‘I TOLD YOU SO”, but in this instance, I was right. Also, how could I POSSIBLY forget the after hours doctor who told me to “break Lance’s “tablets” into halves, and only give him a half dose while he was unwell, despite having “TYPE 1 DIABETIC” emblazoned in red on his file!!!!!! Not to mention, I alerted the doctor,by stating;”I AM PRESENTING MY SON WITH IDDM TO YOU FOR A SECOND OPINION REGARDING HIS INSULIN DOSES….!!!!!!”)

30% of adults also reported that diabetes was not the first diagnosis when they became ill.

Almost 20% of adults did not consider their diabetes to be well managed, however, around half of repondents reported no complications, and no emergency room visits since diagnosis.

FAMILY, FRIENDS AND PUBLIC.

Almost 30% reported feeling extremely worried about having a hypo at work or school.

The good news was that just over half of the respondents felt confident that their fellow workers or school friends could assist in an emergency.

THE DEVASTATION.

Nearly HALF of all parents reported being made to feel that their child’s type 1 diabetes was their fault, due to the constant confusion between type 1 and type 2 diabetes. EVERY PARENT  HAD AN ENCOUNTER RELATING TO AN INSENSITIVE, IGNORANT OR DELIBERATELY CRUEL REMARK ABOUT DIABETES, causing heartbreak to them or their child.

Source:

JDRF Update newsletter, Winter edition, 2008.

Comments (2) »

Desperate And Dateless-When Diabetes Turns A Date Into A Dismal Disaster.

This is a post that I have wanted to write for a long time, but I felt that the topic could be slightly cringe worthy.

I still feel that way, but I’m going to continue this time, instead of writing a draft and deleting it the next day.

In case you aren’t aware, I am a single, 31 year old mother. I have one child, Lance, who is the epicentre of my existence. We have lived through almost six gruelling years together, battling against severe hypoglycaemia, and more recently, wildly fluctuating blood sugar levels that were attributed to the release of growth hormones.

It hasn’t always been this way. I was once a happily married twenty-something when I discovered that I was pregnant. Life was peachy-Scott, my then-husband and I lived in a fabulous home, and wanted for nothing. We were not planning to start a family so quickly, however, as soon as we both saw the two “pink lines”, we were consumed with the thought of new life entering our little world.

A Very Positive Result!
A Very Positive Result!

We had an incredible first year with our gorgeous son. Lance was meant to be with us-he would gaze at me as if he had known me for years, even as a newborn. If I heard him crying, I only had to soothe him with some soft, comforting words or a lullaby, and he would settle immediately, soaking in my essence. We were incredibly close, we had bonded whilst Lance was in-utero. He knew me from the moment he was handed to me.  Without a doubt, the most incredible experience of my life.

Fast forward 1 November, 2002. Diagnosis Day. Hurricane Mellitus.

After a week in hospital, we returned to our house. It didn’t feel like “home” anymore. There was evidence everywhere of the chaos that had overwhelmed us prior to hearing “those” life-changing words.

That’s when the cracks began to show. I became so protective and vigilant of Lance, and without even realising it, I began to focus all of my attention onto Diabetes.  Whilst Scott slept alone, I would be lying beside Lance’s cot-observing, watching, testing..trying to avoid disaster or the possiblity of more distress in hospital for Lance.

A huge, jagged welt had divided the amazing relationship that Scott and I once had. He bottled his feelings, and never displayed any grief or remorse about this devastating misfortune that had been inflicted upon our son. I resented him for that tremendously. (It wasn’t like I wanted to see him sitting around, paralysed with heart-wrenching pain or in a constant state of distress, but his ability to move on seemed so callous to me.)I mistook his way of coping as not caring.

On 8 April, 2003, I lost my older brother to a horrific, aggressive cancer. He was diagnosed soon after his birthday in February, and died an agonising death five weeks later.

On May 23, 2003, Scott and I officially separated. We knew it was a permanent decision, and that there was no going back.

I left our family home, and returned to my hometown with Lance to be with my parents.

Scott left for Melbourne-again, I was full of resentment that he had the ability to abandon us, when we needed him the most. (I now realise that he spent a year there in complete devastation. He returned to Queensland one year later.)

I soon felt strong enough to find my own accommodation, and it was really important to me that Lance felt like he had a home again. Within the space of six months, I found myself existing as a single parent, with a baby who had a relatively short honeymoon period, in a city that had limited medical professionals/facilities for infants with Type 1 Diabetes. I spent that spring following a meticulous routine, in an attempt to create some stability for myself. The upheaval of my son’s diagnosis, the ruination of my marriage, the death of my brother and living a completely foreign lifestyle had left me longing for each day to end, so that I could disassociate myself from reality by sleeping.

Fast forward to 1 September, 2008. The first day of the season synonymous with new life. Spring has officially sprung.

My baby is almost 8 years old, and has grown into a fine young man. His Dad and I are still fantastic friends. I have a network of supportive and kind friends around me. However, despite a huge improvement in my quality of life since the train wreck that was 2003, I am desperately lonely and crave the company of a man.

There. I said it.

It’s not like I haven’t attempted dating, either.

For the past two years, I have felt reasonably safe leaving Lance in the care of my parents or Scott. I have had a few opportunities where I have been asked out for dinner, or to catch a film. The first few times were atrocious..I was sitting in the female toilet,mobile phone in hand,  whispering to my father to do a fingerprick so I knew what Lance’s level was.

 However, with time, I soon began to unwind and relax about leaving Lance for a few hours here and there.

I was lucky enough to score a date with someone whom I had admired from afar for years. He approached me, which was even better. We had a fabulous night out-a brilliant meal, no awkward pauses, much laughter and upon leaving the restaurant, I felt my heart THUD THUD THUD as he slipped his hand into mine.

All weekend, we exchanged text messages. There was a huge va va va voom factor going on. I was so incredibly excited. I knew that this guy, Callum, actually liked “me”.

I was even more impressed when he asked to meet Lance. (As Lance is such a huge part of me, a man who asks to meet him automatically gains mass credibility.)

I suggested that we meet up at the park on a weekend. He was more than happy with that suggestion.

The weekend finally approached, and I was sick with nerves. Lance was a little too young to realise how I was feeling. We arrived at the park, and there he was, sitting at a picnic table with his back to us. He had a huge bucket of KFC and their many various MSG laden side dishes laid out. Taking a deep breath, I held my head high, and approached him. He put out his arms for a hug, and I briefly had fantasies of swiping the food of the table and..well, you can fill in the blanks.

I digress.

The moment arrived when I introduced my boy, to a man who that I could imagine sharing something special with. Callum got down to Lance’s level, and shook hands, and playfully ruffled his hair. Lance seemed to like him, he chattered away, asking many questions and making fine small talk.

Callum opened his bucket of KFC. (Naturally, I had told Callum all about why I was suddenly single, and living alone with my son. He knew about Lance’s condition, and had shrugged it off as being “no drama whatsoever.”                                                                                                                                                             

“Here buddy, put your plate out and dig into some chicken,” Callum gestured enthusiastically.

“No, thank you Callum. I have my own sandwiches and fruit salad here with me. Thanks for the offer though.” Lance replied.

“Whaaaaaaaat! A kid who refuses KFC? You don’t know what you’re missin’ out on mate! Come on, your Mum and I are going to have some, I don’t want you to miss out.”

 (I wanted to ask a kid in the sandpit to bury me.)

“No, it’s fine. Thanks anyway. I don’t eat takeaway. It’s not good for my diabetes.”

There it was. The truth.

We sat in silence, eating our chosen meals.

Lance asked if he could go and play, and I gave him the go ahead.

“I thought you said his diabetes had nothing to do with diet!!” Callum said with an unexpected tone of  exasperation.

“Oh, it doesn’t. Well, not really. It’s good to encourage healthy eating habits, that’s all. Junk food plays havoc with blood sugar levels, too.” I replied innocently.

About 30 minutes later, I called Lance over for a fingerprick. He was panting and laughing, and out of sheer habit, wiped his finger on a serviette, ready to be tested. I got a droplet of blood, got a decent result, and told Lance to return to the playground.

(The following really hurts to write.)

“Whoa, what the heck was that? You should have prepared me for that! That was so WRONG! What sort of diabetes does he have if you have to do that to his fingers? Never do that in front of me again, hey. It’s so wrong that he was so relaxed and calm about it! So much for my lunch, my appetite is gone.  That was just SUCH a spinout.”

I was devastated. This man was prepared to accept me and my son as a package, but, as Diabetes wasn’t welcome, that meant that we weren’t going to be welcomed either.  Soon after his “spinout”. he yawned and said that the “sun had made him feel seedy.” (Or maybe it was my son and his fingerprick that made him feel seedy….) He grabbed his chicken, hugged me again, this time like there were metal bars between us, and said, “See ya babe. I’ll call you.”

After his little outburst, I was completely over Callum.

( I received an email two days later, telling me that he had dreamt of a future with me, but he couldn’t cope with having a “sick” kid in the picture.)

After I had recovered from my shock and disbelief, I decided that I wasn’t going to let one bad experience deterr me from dating. I let a friend introduce me to her brother, Jayden. We had a lot in common, but there wasn’t a lot of spark. However, I was happy enough to make a close male friend. He was a winner with Lance-he would read him stories and wanted to learn how to do fingerpricks. My faith in humanity was temporarily restored.

One weeknight, he appeared at my doorstep quite late, as he knew that I am a chronic nightowl. He slipped of his shoes and handed me a DVD and a bag of popcorn. This was the quality in a man that I love. Someone that is willing to be throw caution to the wind, and be spontaneous and fancy free. I was suitably impressed.

We sat together, and began watching the film, complete with subtitles. Ahhh..a man with eclectic taste in film. Had I been too judgemental with Jayden? He had definitely impressed me; he even put a cushion on his lap and told me to lie down whilst he gave me a temple massage. I was in sheer bliss until I heard a stifled cry.

I was up as quick as a flash, and hit the pause button. It was Lance. I turned on the night light. His hair was clamped down to his forehead with sweat, and his limbs were twitching.

BSL: 1.8mmol/L. It made no sense, especially as he had gone to bed at 9.3mmol/L after a suitable supper, only two hours beforehand. He was staring straight through me, and I knew it would be hopeless trying to coax him to drink. I assembled a glucagon injection and planted it into his thigh.

I caught a glimpse of Jayden out of the corner of my eye. He appeared as though he may faint.
“Ahh..Kate, don’t you think I should call an ambulance or something? That was really disturbing to watch!” he jittered.

“Well don’t watch, then!” I snapped back. I held Lance close to me, and sang softly as he sobbed.

After ten minutes, his blood sugar had climbed to 5.2mmol/L. The fingerprick was enough to set off the shock, and Lance began screaming and writhing.

I could see Lance turning a whiter shade of pale, and I knew that he was going to be sick, a common reaction from an emergency injection of glucagon.

“Jayden! Could you please grab some towels from the linen cupboard and..”

Too late. I wore most of Lance’s supper all through my hair and down my neck.

“Listen, Kate, I’m going to take off, okay? I’ve called for a taxi, and I’m going catch up with you really soon. Hope the little fella is alright-what the hell happened just then?” His voice faded away, and was followed by the distinctive sound of my front door closing. I had no choice but to take Lance into the shower with me, and clean us both up.

The next day, Jayden’s sister called, asking after Lance. I told her that her brother did a runner, something I didn’t really expect, considering that we were spending a lot of time getting to know each other.

“Oh yeah, he said that he would feel too scared to be around Lance in case that happened while they were playing or something. He’ll be in touch, though.”

(I saw him last Christmas in the mass crowds..I called his name, he turned around and grunted, “Oh, Hey.”)

Merry Christmas to you, too.

I’ve since found out that I’ve been described as a “great chick, heaps of fun, but with wayyyyy too much baggage..”, “she’s someone who I would definitely consider dating, but I’m not interested in having dates if she’s got her mind on her kid instead of me.”

So, this is my dilemma. I don’t have a problem meeting single, impressive-at-first-glance guys. I always assess them first, ie: genuine, sincere, honest-along with the ability to accept the good in every situation. I may have a son who has Type 1 Diabetes, but in total honesty, between the both of us, we are a really good catch. As much as I engage in “Dad” activities, I can’t possibly replace his Dad. Lance misses that, despite the fact that he is willing to spend time with me and do whatever I’m doing, without a complaint. If a male ever comes to our home, whether it be a tradesman or the guy who mows my lawn, Lance will quiz me later that day on whether I would “go out” on a date with said person. I always answer his questions as honestly as I can, and usually I reply that I don’t know about “his” personality, so I couldn’t possibly make a judgement based on the fact that “he” was polite/friendly/gorgeous.

As soon as the question, “So, what school do you go to?” is brought up, things usually go downhill very quickly.
“Why would you want to do homeschool when there are so many great little schools here?”

It’s then when I have to launch into the spiel about Lance’s vulnerability regarding hypoglycaemia. Like a reasonably ditressing percentage of straight males, they will appear concerned,shake their head in disbelief, offer a “tisk tisk” or two, or a “poor little guy”, when in fact, they are thinking..”Uh oh…high maintenance alert, no private time for sex, she’s going to be exhausted by the end of the day, there’s going to be interruptions galore when I’m trying to get busy with her..” Even the most genuine of men that I have met eventually show their true colours. They are single, therefore they want a low maintenance girlfriend who will slot easily into their already established and inflexible lives. 

I simply don’t fit into that category.

At the beginning of this year, I attempted to go on one more date. His personality was quite ordinary, his favourite singer was Dolly Parton, and he wore socks with sandals. However, I do try to treat everyone equally, and I hoped that he may be an amazing conversationalist or incredibly charismatic..

As the night progressed, he interrupted me mid-sentence and exclaimed, “Wow, your life is much more exciting than mine. I think that you’d be bored stupid by me.”

“So, is that what you really feel, or is code for how you REALLY feel?” I asked.

“Yeah, I’m not the best with kids, I’m sorry. Plus I am in recovery, I am an alcoholic, and I don’t think I would  be a very good person for you to associate with.”

“Okay…Well, I do appreciate your honesty, I really do. Can we at least be friends, do you think?”

He left his mobile number on the table. He also forgot to pay his bill.

(Oh, and his mobile number was a fake. I can’t believe I thanked him for his “honesty!”)

So, I decided a few months ago, “no more pre-organised dates.” I believe that the right man will come along, but ideally, I would prefer it to be sooner than later. I have worded up all my friends, and they know not to attempt anymore set-ups.

So now I just have to wait for the Universe to deliver a genuine, sincere, kid-friendly, stable, extroverted, intelligent man, who won’t run a mile at the thought of being with a woman who is very closely associated with a chonic condition.

I know you’re out there somewhere!!

 If I’m not concerned about being with a man who has a child with a medical condition, then there just HAS to be single fathers’ out there who are unphased by a treatable condition being part of the package.

P.S. I have been composing this post for a few days now.In an incredible twist of fate, there is an exciting conclusion to my tale of woe!

 Lance ALWAYS greets our postman. As soon as he hears his motorbike approaching, he’s outside giving the postie all his latest news.

Today, Lance bought in the mail. It was bound together with a rubber band. As I flicked through it, a piece of loose paper with the Australia Post letterhead fluttered to the floor.

It read:

“Hi, I’m Thomas, your postman. Would you care to have dinner sometime? I’d like to get to know you and your boy is welcome to come too. Speaking to him is the highlight of my day, he’s one amazing kid. He mentioned that he thinks your (sic) lonely. Well, so am I. I have always wanted to date a redhead.Lance assures me that you’ll love to come on an adventure with me. Here’s my number. Leave a message if I don’t answer.. I really hope that you’ll ring and that I haven’t been too forward.

Regards, Tom.

PS. I’m so glad Lance got his pump. It’s pretty flash! I hope this makes life easier for you both now. I’d like to learn about it, too. T.”

My face aches from smiling. I’m going to call him tonight.

He was certainly right about something-Lance IS one amazing kid. 

 

Comments (5) »

My First Year As An Official D Blogger.

Today I took a moment to inspect my blog. It occurred to me last night that I have been doing this blogging caper for one month shy off a year!

I saw photos of Lance that actually made me gasp, as he has grown SO MUCH! His appetite has to be seen to be believed- is it any wonder I have transformed into Suzie Homemaker, preparing batches of cookies, muffins and other diabetes-friendly taste sensations. He’s morphed from a little boy into my best pal. We chit-chat and laugh all day long, and never tire of each other’s company. I’m so blessed to have him. 😀

My Best Mate-All Grown Up.

My Best Mate-All Grown Up.

I recalled historical events like World Diabetes Day, and the ousting of our former stale and tiresome Prime Minister.

The First Recognised World Diabetes Day.

The First Recognised World Diabetes Day.

Little Johnny Howard. Bloody GST!

Little Johnny Howard. Bloody GST!

I read comments from all of the wonderful, supportive and unfailingly kind D Bloggers, when Lance was diagnosed with his first complications.

I also marvelled at the many new and special friendships I have made.  I am so proud of the people that I call “friend” in my Blogroll, each of them are entirely different, and it’s that diversity that I dearly cherish .

Over the past year, I have reinforced my friendship with my good friend, Shannon, who is a fantastic confidante, and so unbelievably kind. Even though we have an ocean between us, we walk in very similar shoes. (Of course, I am Lance’s Mum, and Shannon is Brendon’s Mom, Brendon being Lance’s penfriend and link to what’s happening in the States.) Dan, my younger brother, has taken some collosal steps over the past year, and as a result is sitting in a very cosy nook, where the sun is always at its brightest. I am so proud of who you have become, sweetheart. Then there is Kerri, the first D Blogger I ever made contact with. She too, has had a fantastic 12 months, and a result, made a stunning bride in May.

I have also made some fascinating friendships along the way.  Janek-possibly the most charismatic man I have ever known. I swear, he is the equivilent of Human Valium-his ability to transform me from inconsolable and exhausted, to tranquil and calm is a true gift. He feels more like family these days. Dae is a really funky chick who Lance has taken an extreme liking to-her posts are very inspiring and fresh, despite lugging Type 2 Diabetes alongside her. Oh my, then there is Kezza. This gorgeous creature has left me wheezing from attacks of manic laughter. He also talks my talk, and without fail, has something interesting or inspirational to say. If Lance could grow up and manage to squeeze his Diabetes into his back pocket the way Kezza can, I would be a very content mother. Other “Mom’s” like Rhonda and Penny are inspirational women, and it’s been comforting to learn about their daily struggles and successes as parents of beautiful kids with Type 1 Diabetes.

To every person who reads my posts, and has sent love, prayers, best wishes and hope for Lance, thank you, thank you, thank you. A sentence with a kind sentiment included can make such a difference on a trying day. It also means a lot to Lance that people from all over the world have him in their thoughts.

This post is dedicated to each of you. You continue to provide me with glimmers of hope, and some raucous cackles thrown in for good meaure. The worst day can be turned around by some gentle, patient words of encouragement.

On the same note, please know that I am always really eager to know how your lives are progressing, and that catching up on your posts is always a special time of my day.

Ah, you are just a bunch of shiny, happy people.

Special. Divine. Wonderful.

Special. Divine. Wonderful.

 

 

 

Comments (4) »

Type 1 Diabetes Misbehaving in Australia-The Latest Findings.

“If it doesn’t run in your family, then how did your son get Type 1 Diabetes?”

I get asked this question SO often, that I want to get some freaky tattoo on my forehead and grow a unicorn horn so that people will be afraid to approach me.

In all seriousness, it appears like Diabetes Australia have been busy little bees, doing lots of research about the escillating rates of Type 1 Diabetes, and even looking at some environmental causes as to why children in particular are more vulnerable to developing the condition.

It seems that in the time since Lance was diagnosed, 2 more Australian children are diagnosed everyday. 6000 new cases of Type 1 Diabetes have been diagnosed between 2000-2006.

Scientists have stopped skitting and scatting and are now acknowledging that there are environmental factors that cause Type 1 Diabetes.

They are questioning the introduction of cow’s milk over breastfeeding, and a lack of Vitamin D during pregnancy as possible causes for the flareup in diagnoses. (Personally, I say a big fat phooey to these suggestions, as Lance was still being breastfed when he was diagnosed, and I walked almost EVERYWHERE in Brisbane (notorious for its blistering heat) when I was pregnant. I feel confident that I had plentiful stocks of Vitamin D.

However, I feel it’s really important to report any new statistics or research that is happening in Australia. Despite our little nation being so far away from where other promising investigations are happening, I am actually very proud of the work that JDRF and Diabetes Australia does to fund the best possible research and trials. So with that, I bring you the latest news.

From 2000-2006, 6000 children had newly acquired Type 1 Diabetes. One of those 6000 children is Lance, who was dignosed in 2002. These stats show that IDDM is on the rise 3-and-a-half percent every year.

Australia has the sixth largest incidence of Type 1 Diabetes in the world. Tasmania has the largest percentage per 100 000 of daily diagnoses in childen under 14, which was much higher that New South Wales, Queensland, or the Northern Territory-the vicinity with the least amount of daily diagnoses.

Finland, Norway and Sweden have the highest incidences of Type 1 Diabetes in children in the world.

(So, what’s going on in Scandanavia? Three gorgeous, first world countries have the highest percentage of the most common childhood chronic disease on the planet. Hmm.)

In the year 2000, 19 out of 100 000 children were diagnosed with Type 1 Diabetes. In 2006, the number of diagnoses had increased to 23 out of 100 000 children.

In this study, it was also apparent that there were almost 9000 new cases in people 15 or over, with males twice as likely than females to develop the disease.

Pleasingly, the Australian Institute of Health and Welfare also acknowledged in their report that young adults aren’t immune to Type 1 Diabetes. They publically announced that contrary to popular belief, it’s not all about young children anymore and that adults of all ages are diagnosed on a daily basis.

The President of Diabetes Australia, Dr Gary Deed said, “There obviously therefore must be some environmental factors driving this increase because on average the blend of Australians and the genetic type of Australians hasn’t changed dramatically over the last five years.”

Dr Deed also confirmed that those who had autoimmune conditions such as coeliac disease, thyroid diseases and rheumatoid arthritis were more susceptible to having Type 1 diabetes.

“Certain viruses in a susceptible individual may cause the eruption of autoimmunity to the pancreas and thus causing Type 1 diabetes,” he said.

There is also a current investigation into whether there was a link between Coxfackie viruses, which can cause cold-like symptoms, and Type 1 Diabetes.

“Early dietary exposure to forms of cows milk have been also studied and that research is ongoing,” Dr Deed said.

Dr Deed said to decrease their child’s risk of having Type 1 diabetes, mothers should ensure they have enough Vitamin D during pregnancy and breastfeed. ( I feel it’s a little premature to be making calls like this; sure, research is underway, but nothing is proven by any means. Hey, listen to Dr Deed over me however. I’m sure he’s not the President of Diabetes Australia because his body shape does justice to a Barnaby Bee costume!)

Barnaby Bee-The Mascot Of Diabetes Australia. Cute!

Barnaby Bee-The Mascot Of Diabetes Australia. Cute!

So there you have it. That’s the news about how Type 1 Diabetes in Australia, and what investigations and research are currently underway in an attempt irradicate it from the Medical Dictionary permanently.

Leave a comment »