Archive for Diabetes superfriends

Incredibly Generous Poison!

Lance and I both developed a  soft spot for a totally-kid friendly American game show,  “Don’t Forget The Lyrics.”

I have a thing for the host…he’s an African American thirty-something hunk named Wayne Brady, who can sing, and is so passionate and eager for the guest to climb the money ladder-Lance is intrigued by the rather eccentric guests that attempt to win a million dollars by replacing the words or phrases of obscure or well-known songs.

 

I have  a photographic memory when it comes to song lyrics, and Lance has caught on to the fact that if I auditioned for the US show, that I may have a chance of winning the jackpot.

Tonight, we sat gobsmacked, as the host Wayne Brady announced who the Celebrity Guest would be.

Bret Michaels, lead singer of metal band, Poison, announced how he was a fan of the show, and that any money he won would not be going in his own pocket, but a place very close to his and all of our hearts.

The Juvenile Diabetes Research Foundation. (JDRF.)

Bret Michaels has had Type 1 Diabetes for 22 years, diagnosed at 7 years of age.

Lance’s mouth was still wide open as he heard the singer speak about his life on injections. It was probably the first time he had heard a famous male speak so honestly about living with their shared condition.

Bret Michaels won $200 000 for …..52441

The Juvenile Diabetes Research Foundation. (JDRF.)

Congratulations, Bret, for sharing your life story with young children, and more importantly, raising US$200 000!!

I have to admit that I am hardly a Poison fan…lol…but I will never forget the night that I watched some hope  for a cure with my son , delivered in the shape of the Bret Michaels. 🙂

                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                      

 

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Numb November

After abandoning my blog for 19 days, I felt I had to address the emotional upheaval and grief that has tormented me this November.

Firstly, I must thank my brother, Janek, for taking hold of the reigns and stepping into the shoes of a writer who focuses on issues concerning type 1 diabetes. He is a truly wonderful person-if you would like to learn more about Janek and his adventures, his blog, The Engineer Also Muses is always an excellent read.

This has been our November.

1November 2008: Lance has shared his life with type 1 diabetes for six years. The first two “anniversaries” I was a sobbing mess. The following two, I made sure that we paid homage to the gift of insulin by having a small celebration. This year, the words, “When he’s been diagnosed for over five years, you’ll need to keep your eye out for complications” resonated through me each time I inhaled, and exhaled. We made a very bland vanilla cake. Balloons and celebrating the worst day of my life weren’t appropriate this year.

1-19 November, 2008: Lance’s symptoms of hot, burning feet at night have not improved or slowed down. Our GP wrote a referral to a Podiatrist specialising in Diabetes Complications. I was able to get Lance and appointment very quickly. We are in a ridiculous sleep pattern at the moment, with Lance unable to sleep until close to midnight, and struggling to wake up by 8.30am the next morning in time for breakfast and school. Not to mention my glassy eyes with unflattering bags big enough to accommodate an around-the-world trip. I have found myself falling asleep at my desk and even while waiting for the oven bell to sound. I don’t know how horses can bare to sleep standing..

We had an early appointment on a Monday morning. Despite my fatigue, I actually took half a valium tablet before we left, because despite EVERYONE telling me that there was no possible way that Lance could have Peripheral Neuropathy, my gut told me otherwise.

Gut was right.

Helen, the podiatrist, was actually two years my junior in primary school. Once we established that we knew each other as children, I told her about the past six years living with Diabetes, and the incredible year I got to spend with Lance before his diagnosis.

She began her examination. (As far as Lance knows, all kids have to have their feet checked to make sure they are growing properly. I don’t want to mention complications or anything negative until the most important day of the year is over.)

 November 23-Lance’s 8th birthday.

He climbed up on a modern black leather chair that was operated by remote control. He seemed suitably impressed. Helen asked him if he would mind wearing a blindfold, while she conducted the “prick test.” Lance, ever the perfect patient, nodded enthusiastically and held out his hand for the eye cover.

Helen examined Lance’s feet, and asked him to point to where the heat mainly came from.

“Do you get pins and needles often, Lance?”

“YEAH! Everyday.”

“When you’re playing on the floor or sitting with your legs crossed?”

“Sometimes when I’m on the floor playing Lego, other times when I’m at my desk doing homework. It just depends, really.”

“Okay then Lance. I want you to say “YES” or raise your hand when you feel a little sting. I’m just going to use something that looks like a nail file to see how sensitive your feet are.”

“Okay then.” He sat back in the chair, totally relaxed. I was on the end of mine, almost hyperventilating.

Helen began prodding the sharp corner of a file into the soles of his feet. She moved to the top of his foot, testing each toe, moving up to the ankle, and then slowly progressing up his calf. When she got to behind his knee, he was startled and let out a loud, “YOW!!!”

No feeling in his feet….

No feeling in his legs…

Helen couldn’t quite look me in the eye. She picked up a stainless steel tool that resembled a spiked vibrator. She went over all of the same spots that she did with the file. This time, he could feel the deep vibrations, and he had his hand up  the for almost the entire part of this examination.

Helen pressed a few buttons on the chair, so that Lance was sitting upright. She removed his blindfold.

She sat down on her chair, and clasped her hands together.

“What we’re looking at is Peripheral Neuropathy. I used a file on his feet and legs that I would use on an adult, so I was expecting him to be hollering. The good news is that he has feeling deep in his feet, as he responded very well to the vibration test. I’m going to conduct a doppler test, which basically means that I will be listening to blood flow in his feet to make sure it’s nice and strong.”

Peripheral Neuropathy. I was still in deep shock at watching my son completely unresponsive to having a sharp file dug into his flesh.

She smeared some blueish gel onto his ankles, and then endeavoured to find the pulse in his feet. A slight frown appeared on her forehead. My stomach was churning over and over, I had a pulse pounding away in my temples. Finally, she found a faint pulse close to his ankle.

“That’s a lot deeper than I would like it to be. It’s quite faint, and..well, we’ll do the other foot.”

What I had been secretly fearing was unfurling right before my eyes.

The pulse in the other foot was much easier to find, and it was strong, and the bloodflow was normal.

I asked what we could do about the symptoms. She said that she would write to Lance’s endo and ask whether he would prefer Lance to commence oral medication or to use topical preparations.

“I don’t want to scare you, but there has been damage done. The good news is that Lance spoke up early, and you pushed for a podiatry assessment, and now that we know that he has PN, we can work at halting any further damage, and he’s at such an advantage being on an insulin pump.”

“I need you to be totally honest with me, Helen, I want to know everything, so I can learn about the best way to help him.”

“I haven’t had a lot of experience in paediatric podiatry, with diabetic complications, I mean. I have some phone calls to make to your team, and some letters to write just confirming my findings.”

I gave her the phone numbers and addresses that she would need to pass the news onto Lance’s Diabetes Educator and endocrinologist. She clasped my hand.

“I am so sorry, Kate. It’s not the worst news, but it’s certainly not what you want to be dealing with at this age.”

Precisely.

We are now, more than ever, working hard to stay in the 4-8mmol/L range.

I have become even more of a Shoes-Outside-Always-Nazi, so much so that I loathe the sound of my own voice. I am constantly sweeping up small, sharp pieces of Lego. I loofah Lance’s feet in the shower every night to improve circulation. I massage with such force that my own hands feel bruised the next day. If I massage his feet the way I used to, he can’t feel it anymore.

Lance is taking a Vitamin B1 Supplement (Thiamin) which is supposed to allieviate the unpleasant sensations that accompany PN. I have to wait for his endocrinologist to return for holidays before I get his verdict about treatment.

I will write more about the reactions I have received about the diagnosis in my next post. I really just wanted to let people who have been kind enough to enquire about Lance know that despite my initial devastation, I’m trying to think of it as just an area of his diabetes care that I’m tightening up on.

The Staff at Lance’s school all wore blue on World Diabetes Day at his request. He wrote an email to his teacher, letting him know that it wasn’t a day for donations, but a day to create awareness.

My good friend, Amy Leverington, was chosen to climb Mount Kosciuszko (Australia’s highest mountain) on the morning on World Diabetes Day to watch the sun rise. Amy has achieved so much already, through putting together her funky anime blood sugar diaries, that have no smacks of Diabetes or bsl readings about them whatsoever. She is currently working on a unisex pump diary-stay tuned!

Our next big appointment is at the end of November-we have to pay a visit to an opthamologist.

My brother, Janek celebrated his 23rd birthday on the 16 November. I’ve already wished him a happy birthday, but I’ll do it again in writing..HAPPY BIRTHDAY, JANEK!! You can pop by The Engineer Also Muses and pay your regards if you care to do so!

One year ago, my dear friend Joel, who lived a life riddled with chronic pain and depression, passed away in his sleep at the age of 32. The pain of his absence is so strong, yet I experience a great sense of relief knowing that he never has to endure a painful, difficult day again.

Joel was buried on my the day that my own angel came into the world eight years earlier. 

Lance, my only child and best friend celebrates his 8th birthday on Sunday.

We’ll be sure to make the readers who have grown to admire Lance’s bravery and wisdom part of his special day, by having the birthday boy in person post about his special day.

November will always be rollercoaster of emotions. With my son’s birth, my life became fulfilled and watching him live was simply an extraordinary experience.

With my son’s diagnosis, he was robbed of his innocence and freedom. Again, my world had a huge shift, and it still leaves me rattled on the odd occasion.

And again, the new diagnosis of Peripheral Neuropathy in November. We arrested the condition early, but it has left me so exposed and aware as to the impact type 1 diabetes can have on the body. It’s a very hard concept to address, especially when you have others around you suggesting that it couldn’t possibly be Neuropathy. I would do anything to say “It’s all been a huge mistake! I was wrong!”  However, as a mother to Lance, and to his diabetes, I just knew. We went through enough wild fluctuations when he was three/four to know that his entire body had worked very hard to keep functioning for that very difficult stage.

Also, I am waiting for the return of my laptop. It is in Sydney, currently being repaired. I was lucky enough to borrow one overnight so that I could catch up on November.

I have all of my attention focused on The Birthday. I did good with getting what he wanted. I need to see the rapture in his smile to help me begin to heal.

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Wheels Of Fortune.

It’s only just over three months away until the 6th annual  JDRF “Ride For A Cure” takes place.

The Hugely Successful "RIDE TO CURE DIABETES."

The Hugely Successful Ride For A Cure.

My good friend and fellow JDRF advocate/parent, Cathy Forbes and her amazing quadruplet of cyclists are hitting the roads for their third trek through the picturesque Barossa Valley In South Australia.

Cathy, her family and friends have one very special reason why the “Ride” is so incredibly important.

Cathy’s gorgeous daughter, Carrie has the double whammy-Type 1 Diabetes and Coeliac Disease.

The Forbes Family have made an incredible contribution over the years through fundraising, in fact this is their third year that they have rode their way that mile further to finding a cure.

Michael On The Road

Michael On The Road

In January, 2009, Carrie Forbes will have two very important family members, joined by two newbies to the team, who will be riding in her honour. Like any JDRF fundraising event, all donations are put directly into laboratories, research projects and trials, in a desperate attempt to find a cure for type 1 diabetes.

Proud Cathy With Her "Boys."

Proud Cathy With Her "Boys"

On behalf of a JDRF Family who have tirelessly worked and participated in so many fundraising events, I am asking www.whydidtheinsulindie.com readers to think of every child, (or remember when you were one) with this insidious condition. The loose change in your pocket will help to increase Cathy’s fundraising total.

                                                                   

To contribute in any small way to JDRF’s Ride For A Cure 2009, and support my friends, Cathy and Garry, and Lance’s friend (and major crush) Carrie, please click on the below link.

http://ride.jdrf.org.au/CatherineForbes/

  Thanks so much, everyone!

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A Victorious Moment-Paying It Forward To Your Favourite Bloggers!

One thing I have learnt about type 1 diabetes is that just when you think your life is akin to an overgrown bunch of noxious weeds, if you look hard enough, smack bang amidst the jungle you can find the most incredible bunch of exotic blooms.

Today, I found a gorgeous flower that made me smile. In fact, I’m STILL smiling.

My friend Kez sent me an email, and told me that I had a surprise awaiting on his website. After a really horrid day, I was intrigued to investigate.

After scanning through his latest post, I soon found myself grinning, as I had become the proud recipient of the Superior Scribbler Award!

I Won This Award!

I Won This Award!

 

The award was originally created by Melissa over at The Scholastic Scribe. She initially awarded the prize to her five favourite bloggers, who then awarded their five faves, and so on.

My tres amazing hombre, Kez-author of Interpret This! has given me the ultimate privilege of sharing with the blogosphere that Why Did The Insulin Die is one of his favourite blogs! 

Kez writes an eye popping and lusciously addictive blog about everything between his passion for a fine automobile to his quirky, everyday life in Melbourne. Somewhere amongst all of that, you will discover that Kez also has Type 1 Diabetes. I often forget this, however, because he has the ability to just get on with the show. He showers the world with his sunny disposition, and he has a heart as huge as a drag queen’s headpiece. It hasn’t taken long at all for Kez to become someone that I dearly cherish as a friend. He is always looking out for Lance, and he has this amazing ability to make me feel so special. So, Kez, on behalf of the staff of www.whydidtheinsulindie.com (I actually DO have a wonderful team on board, I have my IT guru, my understudy, in case I’m stuck in a crisis or an emergency;he knows Lance and me well enough to take over, and of course, the star of the entire production, Lance,) THANK YOU SO MUCH, Kez, for selecting our little blog as one of your top 5, out of so many worthy and wonderful reads!

So, before I reveal my Top 5 bloggers, I am required to publish the rules of participating in heaping ice buckets full of praise and adoration upon the worthy winners.

 

Each Superior Scribbler must in turn pass The Award on to 5 most-deserving Bloggy Friends.

  • Each Superior Scribbler must link to the author & the name of the blog from whom he/she has received The Award.
  • Each Superior Scribbler must display The Award on his/her blog, and link to this post, which explains The Award.
  • Each Blogger who wins The Superior Scribbler Award must visit this postand add his/her name to the Mr. Linky List. That way, we’ll be able to keep up-to-date on everyone who receives This Prestigious Honor!
  • Each Superior Scribbler must post these rules on his/her blog.

Okay, now that the official part of the post is over, we now get down to the nitty gritty, as i announce the winners, carefully chosen by me, with some very important input from Lance.

In no particular order…

The first winner is Janek, author of The Engineer Also Muses. The name says it all..Janek is an Engineer, working tirelessly (in between msn conversations) to become Dr Janek, by obtaining his PhD. He muses about everything from humourous number plates to posting how many SMS messages he has exchanged with his beloved since they began dating approximately 4 months ago. On a more serious note, Janek is struggling to comprehend with a mysterious burden that affects his home, work and social life. He has an unexplained form of chronic pain, and despite being zapped, prodded and scanned, his medical team are unable to give him an actual reason for why his pain exists, and have therefore lumped his case with the title of nothing short of having a severe case of “Chronic Pain.” Janek manages to keep his head held high and hopes for the best-his wisdom and maturity is so advanced despite his almost 23 years. He is also a passionate advocate for many causes, and when he gets on his soapbox-be warned. Janek is only relatively new to the blogosphere, but has embraced entertaining his readers with gusto. Bravo, Janek.

Kerri‘s award winning blog, Six Until Me, chronicles her last 22 years that she has shared with Type 1 Diabetes. Determined to live life to the fullest, as well as being an amazing advocate for all people with The Big D, her posts leave you with food for thought, empower you to maintain superior health and a positive outlook despite having a pancreas void of insulin, and her ability to share her own terrifying experiences with hypoglycaemia and hyperglycaemia are absolutely heartwrenching. Kerri’s was the very first blog that I came across almost three years ago, I was so intrigued and excited to find an online account of survival that was written by a twenty-something, successful women from Rhode Island who knows her diabetes back to front and inside out. An absolute must read for anyone new to the Diabetes Online Community. I can guarantee that you will find yourself wanting your daily hit of Six Until Me. Oh! By the way, Kerri has managed to make her gorgeous cat an international star! 

Dan, author of My Life In The Slow Lane tells of a young man who has overcome some very dark phases through adolescence with chronic illnesses and depression. He has found the inner strength to live alone in Sydney and attend University, while enjoying an entertaining social life and seducing the reader with his incredible talents as a wordsmith. A inspiring story of how chronic illness could not hold this man back; he managed to emancipate himself from its clutches. Dan can fully identify with how living with Fibromyalgia, ME and Chronic Fatigue Syndrome are so misunderstood, very much like Type 1 Diabetes, often accompanied with the dreaded exclamation, “But you look so well!” A laugh-out-loud account of day-to-day life as a student, a patient, peppered with the excitement and challenges of a flourishing relationship. An inspiring and passionate read, with a twist of ascerbic wit and the odd, unapologetic outburst.

Bitten And Bound The Not So Pretty Side Of Hollywood speaks for itself. An all-girl lineup contribute to this blog (Missy, Meg and Andrea), giving delightfully humourous accounts of C Grade celebrities getting up to mischief.  I  recently enjoyed the Sarah Palin/Tina Fey SNL fiasco that the girls were able to present for our viewing pleasure. Bitten and Bound is your number one stop to find out about scandalous behaviour of the rich and famous, (yes, you, David Duchovny of the XXX Files.) An up-to-the-minute blog about Hollywood behaving badly, with fantastic pics to boot.

And the final spot belongs to..Shannon. This woman is possibly the U.S version of me. Her blog, Mom Wants A Cure tells of Shannon’s eldest child, Brendon, and his diagnosis of type 1 diabetes followed by his survival and the family’s acceptance of The Beast. Unlike me, Shannon has to devote herself to her husband, her two other chlldren and helping Brendon look after his Diabetes, as well as finding the odd ten minutes for herself. Both Lance and Bren were diagnosed at roughly the same time, and are pretty much the same age. Shannon’s blog is a hoot, she is unashamedly honest, (she enjoys colouring her posts with the odd expletive.) I often laugh out loud when I come across expletives used as adjectives or even the only word in a sentence. Dealing with hypos and high blood sugars year after year are bound to bring out some type of frustrated exclamation!) This woman also has the hugest heart and shows so much compassion to those in need of an ear. I relate to Shannon in so many ways, because we both are Mum’s/Mom’s who want nothing more than a cure. “Pure and Simple.” 

 Congratulations to these well-deserving recipients! It was definitely a difficult selection process. Each of these blogs provide me with comfort and much laughter.

Once again, big love and hugs to you, Kez. It was actually very difficult to keep you off my favourite five list!To all of the bloggers who have no reason to include a diabetes info and support blog on their blogroll, but have added us anyway…THANK YOU, TOO!! You are providing an invaluable service, by helping to educate your readers about type 1 diabetes. Better advertising than money can buy, I say! 🙂

 

 

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Yes Or No.

Stolen from Dan.( My brother, Lance’s Uncle and my IT guru.)  I even stole his hunky pics.

 For more eye candy and a jolly good read, visit

 My Life in The Slow Lane.

SO…Here’s the game.

 Only two rules– and you MUST follow them:
1. You can only say Yes or No.
2. You aren’t allowed to explain anything unless someone asks you, so feel free to ask.

1. Taken a picture fully naked? — YES
2. Painted your room? — YES
3. Made out with a member of the same sex? — YES
4. Driven a car? — YES
5. Danced in front of your mirror? — YES
6. Have a crush? — YES
7. Been dumped? — YES
8. Stolen someone’s heart? — YES
9. Gotten in a car with people you just met? — YES
10. Been in a fist fight? — NO
11. Snuck out of your house? — NO
12. Had feelings for someone who didn’t have them back? — YES
13. Been arrested? — NO
14. Made out with a stranger? —YES
15. Left your house without telling your parents? — YES
16. Had a crush on your neighbour? — YES
17. Ditched school to do something more fun? — YES
18. Slept in a bed with a member of the opposite sex? — YES
19. Seen someone die? — YES
20. Been on a plane? — YES
21. Kissed a picture? — YES
22. Slept in until 3? — YES
23. Love someone or miss someone right now? — YES
24. Laid on your back and watched cloud shapes go by? — YES
25. Made a snow angel? — NO
26. Played dress up? — YES
27. Cheated while playing a game? — YES
28. Been lonely? — YES
29. Fallen asleep at work/school? — YES
30. Yelled at a friend? — YES
31. Felt an earthquake? — NO
32. Touched a snake? — YES
33. Ran a red light? — NO
34. Been suspended from school? — NO
35. Had detention? — YES
36. Been in a car accident? — YES
37. Hated the way you look? — YES
38. Witnessed a crime? — YES
39. Pole danced? — YES
40. Been lost? — YES
41. Been to the opposite side of the country? — NO
42. Felt like dying? — NO
43. Done something you told yourself you wouldn’t? — YES
44. Laughed until something you were drinking came out your nose? — YES
45. Caught a snowflake on your tongue? — NO
45. Sang in the shower? — YES
46. Made out in a park? —YES
47. Had a dream that you married someone? — YES
48. Glued your hand to something? — YES
49. Got your tongue stuck to a pole? — NO
50. Ever gone to school partially naked? — YES
51. Been a cheerleader? — YES
52. Sat on a roof top? — YES
53. Didn’t take a shower for a week? — NO
54. Too scared to watch scary movies alone? — YES
55. Played chicken? — NO
56. Been pushed into a pool/lake with all your clothes on? — NO
57. Been told you’re hot by a complete stranger? — YES
58. Been easily amused? — YES
59. Mooned/flashed someone? — YES
60. Cheated on a test? — NO
61. Forgotten someone’s name? — YES
62. Slept naked? — YES
63. Gone skinny dipping? — YES
64. Blacked out from drinking? — YES
65. Played a prank on someone? — YES
66. Gone to a late night movie? — YES
67. Looked at your reflection as you walked past a window? — YES
68. Failed a class? — NO
69. Choked on something you’re not supposed to eat? — NO
70. Played an instrument for more than 10 hours? — NO
71. Cheated on a girl/boyfriend? — NO
72. Thrown strange objects? — YES
73. Felt like killing someone? — YES
74. Felt like running away? — YES
75. Have you ever ran away? — NO
76. Made a parent cry? — YES
77. Cried over someone? — YES
78. Had sex more than 3 times in one day? — YES
79. Dated someone more than once? — YES
80. Had/Have a dog? — YES
81. Own an instrument? — YES
82. Been in a band/orchestra? — YES
83. Drank 25 sodas in a day? — NO
84. Broken a CD? — YES
85. Shot a gun? — NO
86. Had feelings for one of your best/good friends? — YES

                                                                               Yes:62   No:24

 

 

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Suffer The Little Children…

I’m a little annoyed.

Maybe it’s all the shenanigans regarding governments and elections of recent times…It’s just made me recall all of the promises and deals that were made relating to an Insulin Pump Scheme that would be applicable for children with IDDM up to 18 years of age before the 2007 election.  

I was first contacted by JDRF Head Office last year, before our Federal Election. A small group of parents and I were asked to contact Mr Howard. Others were pleading with our Members of Parliament to take into consideration how many children with diabetes don’t have insulin pumps, and how desperately they needed them.

On International Diabetes Day,2007, Mr Howard historically announced that, if re-elected, he would provide $22 million to JDRF, to ensure that many children, and especially the ones who truly needed a pump, got one.

Despite our inital frenzy, at this stage, Mr Howard was lagging in the polls, so Kevin Rudd and team were our next target.

We rang Labor party hotlines, we wrote to Kevin personally, we even joined his Facebook Page. JDRF Youth Ambassadors followed him around and spoke of their need for an insulin pump program to combat their ailing health.

He knew that this was something that advocates and JDRF expected him to at least match, or maybe supercede the amount promised by Mister Howard.

So, Kevin Rudd became our new Prime Minister, and we said goodbye to our 22 million dollar promise.

Nothing was mentioned about Health, nor Childhood Diabetes in his victory speeches. I was silently worried.

He made grandiose promises to amend the public hospital debacles, and even establish doctor’s surgeries replaced by state-of-the-art medical centres, where you could see your doctor, as well as have all of your blood work, x rays, physio and dentistry taken care of in the same complex.

Australia nodded and agreed wholeheartedly. This was a man who cared for the little Aussie battlers.

However, in that election promise, there was no mention of a insulin pump grant.

In the meantime, Lance’s health took a turn for the worse. His endocrinologist spoke to me about the possiblity of getting an insulin pump.  When I bought up the possibility of obtaining one through the Insulin Pump Grant, he raised his eyebrows, stopped writing frantically, and shook his head. Hot, angry tears spilt down my face.

I began looking around and finally settled on a Medtronic pump.

The rep, Louise, and I gained a fantastic rapport. 

.                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                      totally  I really loved the way she communicated with me and understood how desperately a pump would be beneficial for Lance. I mentioned the insulin pump grant to her. She grimaced, and said something along the lines of, “If it does happen, it won’t be for years, and it wouldn’t be anywhere near the amount promised by Howard.” I sighed, disheartened, and continued listening.

 I put DAYS into writing letters to different influential people-some responded, but it all depended on the upcoming election. As soon as we knew that the Labor party were victorious, I began furiously writing to various Health Ministers, Members of Parliament, and King Pin himself, without one reply.

Suffer the little children..."

Suffer the little children...

Just before our annual budget was released in May, our very good friend, Gareth Eldershaw, (Gareth completed an interview for www.whydidtheinsulindie.com earlier this year), wrote to Arch Bevis,Federal Member for the Seat of Brisbane.

This is what Arch wrote in his comments regarding the budget results.

Firstly, he made reference to the letter that Gareth had written to him, complete with Jelly Baby Lapel Pin. (Budget night happens to coincide with Jelly Baby Month, so we make it a point that each MP is sent a pin and request that they wear it on their lapel on the night that has the Nation at a standstill.)

“May is a special month for JDRF as we try to make the community more aware of Type 1. As you know the jelly baby is a sort of motto that represents a vital aid to help us recover from a “hypo” when our glucose levels are too low. There’s a little blue guy in the envelope that I’d like to give you and ask you to wear in May and especially on Budget night.”

I can tell Gareth that I am wearing his little blue guy on my lapel, as I did last night during the budget. Gareth went on..

” We talked about the grant to fund the reimbursement of insulin pumps for kids under the age of 18. 3000 pumps for all these kids (over a 5-year period) would cost $35m. It’s a lot of money I know, but you know how much it will save the government in the future? Of course it will make life a bit more bearable (and safe too) if kids can use insulin pumps.”

I was very pleased to have been able to ring Gareth up today and say that in last night’s budget we made a step in that direction. I do not pretend that we have gone as far as we need to. I want to see the opportunity to benefit from an insulin pump—and not everybody with diabetes is suited to an insulin pump—be made available to all. But I do applaud the Minister for Health and Ageing, Nicola Roxon, for her efforts in recent times in ensuring that the budget includes a provision that will see about 700 young Australians gain access to an insulin pump. I look forward to continuing to work inside government now rather than from the opposition benches to try to have that program extended.

The grand result?? JDRF were given $5.5 million, to be dispensed over three years, to provide insulin pumps for 700 children.

After much planning and deliberating, JDRF will begin accepting applications for contributions towards the purchase of an insulin pump. It will be based on a financial means test, and the most that can be received per child is $2500. Families without health insurance can begin applying for insulin pumps for their children in November.

So, with the average insulin pump costing $6000, (notice, I say average ), and with approximately 1.7 million dollars provided each year, it won’t take long before all of the money is dispensed. If you are a suitable candidate for the $2500, what happens then? How do you get the rest of the money? Fundraising is about the only real option,and we all know how difficult that is.

I’m really not trying to look a gift horse in the mouth.

I’m so grateful that we were acknowledged at all, the heart and soul of some 50 parents went into sharing their children’s private stories regarding life without an insulin pump. I’m sure PLENTY of other charities tried their hardest to get a financial boost without succeeding, so I really don’t want to appear like I’m complaining or ungrateful.

I guess it just smarts a little that we could have had 22 million dollars.

It hurts to think that some families will qualify for the $2500, but will be totally stuck when it comes to raising the rest. Not to mention those who receive $750-I mean, what happens there?

  • Knowing JDRF Australia, they may have some amazing fund raising venture up their sleeve, but in all truthfulness, does it leave families any better off than before this money was offered? Personally, if I hadn’t have paid for Lance’s pump outright, and I knew that there was NO way I could afford to pay for the outstanding amount, I think (and only if Lance’s health was in excellent shape), that I would forfeit the opportunity. JDRF staff are going to have to make some really difficult decisions without being biased to families they know well and adore.

 Vote for whomever will give you a better Health Care System, America!

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Thank You, Squidoo!!

Ten days ahead of schedule, Squidoo have already fulfilled their promise of an $80 000 cash giveaway to many worthy organisations! 

Five percent of the overall votes went to the Juvenile Diabetes Research Foundation, with each vote earning a $2 donation from the amazing team at Squidoo.

Considering that the voting closed so early, approximately $4250 is certainly a tremendous effort!!

(Exact amounts to be donated will be published on the Squidoo website when the final counting is completed.)

Good Job, Everybody!!!

Good Job, Everybody!!!

Considering that Lance and I sell jellybabies each year for $2 per unit, I can assure you that achieving anywhere close to a four digit number in a two week period is a mammoth accomplishment.

Just through word of mouth, an email here, a post-on-a-blog there…..WE ALL DID JDRF PROUD.

Oh, by the way, you CAN continue voting over at Squidoo if you are at all interested in how much we could have raised by 15 October, (for bragging rights only.)

On behalf of JDRF (Australia), THANK YOU SO MUCH, Squidoo, for your incredibly kind offer, that touched so many different charities and in some way, big or small, made a difference.

(Squidoo have always been exceptional supporters to Type 1 Diabetes by providing much needed funding for cutting edge research.) 

 To all who voted, you already know that you are smokin’ hot!

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