Archive for Hope For A Cure

Diabetes Awareness ’09

It’s that time of year again boys and girls, ladies and gentlemen. Next week is National Diabetes Week, and, starting Sunday, July 17, there’s tonnes of awareness to be done.

Diabetes Australia has a brief note about the upcoming event, and really doesn’t go any further into it. All that is definitely on for next week is the 2009 Walk to Cure Diabetes, run by JDRF.

Needless to say, the most important part of any awareness week is you. Get out there, talk to people about Diabetes, donate to JDRF or Diabetes Australia. And pray that, one day, a cure will be found.

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A Time For Reflection

Devoted readers,

I apologise forthwith for the lack of updating of this page, but my life, as Kate and Lance’s, has been filled to brimming with events and occurrences. My dearest nephew has been in horrible pain, and Kate is trying to cope on little sleep and a life almost devoted to D and PN.

Please, send your wishes on to them, and pray that relief will soon be at hand.

I want to reflect back on what has been a trying time for Kate and Lance. Their tireless work throughout this year to prove to doctors that PN can exist in a young child has resulting in help from many of you, for which I thank you all. I will shortly write a more detailed post, when I am not knee-deep in Carbon Nanotubes and trying to sort out plagiarising students.

We hope for a cure to come swiftly to aid all of us, and hope for the best for Kate and Lance.

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Incredibly Generous Poison!

Lance and I both developed a  soft spot for a totally-kid friendly American game show,  “Don’t Forget The Lyrics.”

I have a thing for the host…he’s an African American thirty-something hunk named Wayne Brady, who can sing, and is so passionate and eager for the guest to climb the money ladder-Lance is intrigued by the rather eccentric guests that attempt to win a million dollars by replacing the words or phrases of obscure or well-known songs.

 

I have  a photographic memory when it comes to song lyrics, and Lance has caught on to the fact that if I auditioned for the US show, that I may have a chance of winning the jackpot.

Tonight, we sat gobsmacked, as the host Wayne Brady announced who the Celebrity Guest would be.

Bret Michaels, lead singer of metal band, Poison, announced how he was a fan of the show, and that any money he won would not be going in his own pocket, but a place very close to his and all of our hearts.

The Juvenile Diabetes Research Foundation. (JDRF.)

Bret Michaels has had Type 1 Diabetes for 22 years, diagnosed at 7 years of age.

Lance’s mouth was still wide open as he heard the singer speak about his life on injections. It was probably the first time he had heard a famous male speak so honestly about living with their shared condition.

Bret Michaels won $200 000 for …..52441

The Juvenile Diabetes Research Foundation. (JDRF.)

Congratulations, Bret, for sharing your life story with young children, and more importantly, raising US$200 000!!

I have to admit that I am hardly a Poison fan…lol…but I will never forget the night that I watched some hope  for a cure with my son , delivered in the shape of the Bret Michaels. 🙂

                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                      

 

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World Diabetes Day, 2008

More guest posting by Janek!

Once again, World Diabetes Day has come (and gone, sorry for late posting), and it’s been celebrated around the world in many different ways. The theme this year was Diabetes in Children and Adolescents, making it particularly pertinent to this blog. As my darling nephew struggles with his own condition, it’s something that I always think about; or, as Helen Lovejoy cries out in The Simpsons, “Won’t somebody PLEASE think of the children?”. This year, Diabetes Australia worked with the JDRF and hosted a gala dinner (or, as my mother calls them, a galah), as well as hosting a group of sufferers as they climb Mt Kosciouszko.

Girls form a big heart and boys form a big foot to promote good cardiovascular and footcare in diabetics in India

Girls form a big heart and boys form a big foot to promote good cardiovascular and footcare in diabetics in India

I found that part of this year’s campaign was “bringing diabetes to light”, and a number of monuments around the world were lit up in blue. I’ve love to post them all here, but Kate might get annoyed with me, so I’ll direct you to the WDD Slideshow and the Flickr page for the photos, and end this post with my two favourite photos…

San Francisco City Hall

San Francisco City Hall

Nagoya Castle, Japan

Nagoya Castle, Japan

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Exciting News

Guest Post by Janek!

Progress is always slow coming. We have been waiting for so long to find a cure for Diabetes, in any form.

Today, another step has been taken: Student’s Insulin Discovery

No, it isn’t a cure, but as science begins to understand how insulin works. And with discoveries like this, science can continue to work on both treatment and towards a cure. Now, more than ever, is a time to consider your donations to JDRF; and Diabetes Australia. If we can fund more research, we can find that cure!

Also, don’t forget November 14 is World Diabetes Day. That’s two days before my birthday. Impressive, no?

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Wheels Of Fortune.

It’s only just over three months away until the 6th annual  JDRF “Ride For A Cure” takes place.

The Hugely Successful "RIDE TO CURE DIABETES."

The Hugely Successful Ride For A Cure.

My good friend and fellow JDRF advocate/parent, Cathy Forbes and her amazing quadruplet of cyclists are hitting the roads for their third trek through the picturesque Barossa Valley In South Australia.

Cathy, her family and friends have one very special reason why the “Ride” is so incredibly important.

Cathy’s gorgeous daughter, Carrie has the double whammy-Type 1 Diabetes and Coeliac Disease.

The Forbes Family have made an incredible contribution over the years through fundraising, in fact this is their third year that they have rode their way that mile further to finding a cure.

Michael On The Road

Michael On The Road

In January, 2009, Carrie Forbes will have two very important family members, joined by two newbies to the team, who will be riding in her honour. Like any JDRF fundraising event, all donations are put directly into laboratories, research projects and trials, in a desperate attempt to find a cure for type 1 diabetes.

Proud Cathy With Her "Boys."

Proud Cathy With Her "Boys"

On behalf of a JDRF Family who have tirelessly worked and participated in so many fundraising events, I am asking www.whydidtheinsulindie.com readers to think of every child, (or remember when you were one) with this insidious condition. The loose change in your pocket will help to increase Cathy’s fundraising total.

                                                                   

To contribute in any small way to JDRF’s Ride For A Cure 2009, and support my friends, Cathy and Garry, and Lance’s friend (and major crush) Carrie, please click on the below link.

http://ride.jdrf.org.au/CatherineForbes/

  Thanks so much, everyone!

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A Victorious Moment-Paying It Forward To Your Favourite Bloggers!

One thing I have learnt about type 1 diabetes is that just when you think your life is akin to an overgrown bunch of noxious weeds, if you look hard enough, smack bang amidst the jungle you can find the most incredible bunch of exotic blooms.

Today, I found a gorgeous flower that made me smile. In fact, I’m STILL smiling.

My friend Kez sent me an email, and told me that I had a surprise awaiting on his website. After a really horrid day, I was intrigued to investigate.

After scanning through his latest post, I soon found myself grinning, as I had become the proud recipient of the Superior Scribbler Award!

I Won This Award!

I Won This Award!

 

The award was originally created by Melissa over at The Scholastic Scribe. She initially awarded the prize to her five favourite bloggers, who then awarded their five faves, and so on.

My tres amazing hombre, Kez-author of Interpret This! has given me the ultimate privilege of sharing with the blogosphere that Why Did The Insulin Die is one of his favourite blogs! 

Kez writes an eye popping and lusciously addictive blog about everything between his passion for a fine automobile to his quirky, everyday life in Melbourne. Somewhere amongst all of that, you will discover that Kez also has Type 1 Diabetes. I often forget this, however, because he has the ability to just get on with the show. He showers the world with his sunny disposition, and he has a heart as huge as a drag queen’s headpiece. It hasn’t taken long at all for Kez to become someone that I dearly cherish as a friend. He is always looking out for Lance, and he has this amazing ability to make me feel so special. So, Kez, on behalf of the staff of www.whydidtheinsulindie.com (I actually DO have a wonderful team on board, I have my IT guru, my understudy, in case I’m stuck in a crisis or an emergency;he knows Lance and me well enough to take over, and of course, the star of the entire production, Lance,) THANK YOU SO MUCH, Kez, for selecting our little blog as one of your top 5, out of so many worthy and wonderful reads!

So, before I reveal my Top 5 bloggers, I am required to publish the rules of participating in heaping ice buckets full of praise and adoration upon the worthy winners.

 

Each Superior Scribbler must in turn pass The Award on to 5 most-deserving Bloggy Friends.

  • Each Superior Scribbler must link to the author & the name of the blog from whom he/she has received The Award.
  • Each Superior Scribbler must display The Award on his/her blog, and link to this post, which explains The Award.
  • Each Blogger who wins The Superior Scribbler Award must visit this postand add his/her name to the Mr. Linky List. That way, we’ll be able to keep up-to-date on everyone who receives This Prestigious Honor!
  • Each Superior Scribbler must post these rules on his/her blog.

Okay, now that the official part of the post is over, we now get down to the nitty gritty, as i announce the winners, carefully chosen by me, with some very important input from Lance.

In no particular order…

The first winner is Janek, author of The Engineer Also Muses. The name says it all..Janek is an Engineer, working tirelessly (in between msn conversations) to become Dr Janek, by obtaining his PhD. He muses about everything from humourous number plates to posting how many SMS messages he has exchanged with his beloved since they began dating approximately 4 months ago. On a more serious note, Janek is struggling to comprehend with a mysterious burden that affects his home, work and social life. He has an unexplained form of chronic pain, and despite being zapped, prodded and scanned, his medical team are unable to give him an actual reason for why his pain exists, and have therefore lumped his case with the title of nothing short of having a severe case of “Chronic Pain.” Janek manages to keep his head held high and hopes for the best-his wisdom and maturity is so advanced despite his almost 23 years. He is also a passionate advocate for many causes, and when he gets on his soapbox-be warned. Janek is only relatively new to the blogosphere, but has embraced entertaining his readers with gusto. Bravo, Janek.

Kerri‘s award winning blog, Six Until Me, chronicles her last 22 years that she has shared with Type 1 Diabetes. Determined to live life to the fullest, as well as being an amazing advocate for all people with The Big D, her posts leave you with food for thought, empower you to maintain superior health and a positive outlook despite having a pancreas void of insulin, and her ability to share her own terrifying experiences with hypoglycaemia and hyperglycaemia are absolutely heartwrenching. Kerri’s was the very first blog that I came across almost three years ago, I was so intrigued and excited to find an online account of survival that was written by a twenty-something, successful women from Rhode Island who knows her diabetes back to front and inside out. An absolute must read for anyone new to the Diabetes Online Community. I can guarantee that you will find yourself wanting your daily hit of Six Until Me. Oh! By the way, Kerri has managed to make her gorgeous cat an international star! 

Dan, author of My Life In The Slow Lane tells of a young man who has overcome some very dark phases through adolescence with chronic illnesses and depression. He has found the inner strength to live alone in Sydney and attend University, while enjoying an entertaining social life and seducing the reader with his incredible talents as a wordsmith. A inspiring story of how chronic illness could not hold this man back; he managed to emancipate himself from its clutches. Dan can fully identify with how living with Fibromyalgia, ME and Chronic Fatigue Syndrome are so misunderstood, very much like Type 1 Diabetes, often accompanied with the dreaded exclamation, “But you look so well!” A laugh-out-loud account of day-to-day life as a student, a patient, peppered with the excitement and challenges of a flourishing relationship. An inspiring and passionate read, with a twist of ascerbic wit and the odd, unapologetic outburst.

Bitten And Bound The Not So Pretty Side Of Hollywood speaks for itself. An all-girl lineup contribute to this blog (Missy, Meg and Andrea), giving delightfully humourous accounts of C Grade celebrities getting up to mischief.  I  recently enjoyed the Sarah Palin/Tina Fey SNL fiasco that the girls were able to present for our viewing pleasure. Bitten and Bound is your number one stop to find out about scandalous behaviour of the rich and famous, (yes, you, David Duchovny of the XXX Files.) An up-to-the-minute blog about Hollywood behaving badly, with fantastic pics to boot.

And the final spot belongs to..Shannon. This woman is possibly the U.S version of me. Her blog, Mom Wants A Cure tells of Shannon’s eldest child, Brendon, and his diagnosis of type 1 diabetes followed by his survival and the family’s acceptance of The Beast. Unlike me, Shannon has to devote herself to her husband, her two other chlldren and helping Brendon look after his Diabetes, as well as finding the odd ten minutes for herself. Both Lance and Bren were diagnosed at roughly the same time, and are pretty much the same age. Shannon’s blog is a hoot, she is unashamedly honest, (she enjoys colouring her posts with the odd expletive.) I often laugh out loud when I come across expletives used as adjectives or even the only word in a sentence. Dealing with hypos and high blood sugars year after year are bound to bring out some type of frustrated exclamation!) This woman also has the hugest heart and shows so much compassion to those in need of an ear. I relate to Shannon in so many ways, because we both are Mum’s/Mom’s who want nothing more than a cure. “Pure and Simple.” 

 Congratulations to these well-deserving recipients! It was definitely a difficult selection process. Each of these blogs provide me with comfort and much laughter.

Once again, big love and hugs to you, Kez. It was actually very difficult to keep you off my favourite five list!To all of the bloggers who have no reason to include a diabetes info and support blog on their blogroll, but have added us anyway…THANK YOU, TOO!! You are providing an invaluable service, by helping to educate your readers about type 1 diabetes. Better advertising than money can buy, I say! 🙂

 

 

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