A rant on modern medicine

I’m sorry I’ve been a little slack in keeping everyone up to date here on Kate and Lance’s blog, but I’ve been a little caught up in a few other things and have just found some time to sit down.

Things have not been going well for my sister-in-law in the north. She and Lance have been racing around trying to find an answer… any answer for Lance’s pain, which no doctor seems willing to believe is Peripheral Neuropathy. It’s at times like this we wish that modern medicine would stop thinking that every person fits into the categories written about in their textbooks.

Life is not identical for each of us. We are not exposed to exactly the same conditions as any other person every day, and even then our bodies respond to things differently. Allergies and intolerances are a prime example of this, and the varying degrees people may be afflicted with such debilitating illnesses as Diabetes, Chronic Fatigue Syndrome, and Fibromyalgia, as well as even things such as stress, anxiety, and depression, means that no doctor can just look in a book, point to a word and say “You have this!”.

It is imperative that Western Medicine remembers to think laterally and logically, combine all factors, and think about the exact conditions that the person is presenting with. If a child is crying every night and requiring 24 hour care to try to ease his pain; if a child can’t feel a pin being forced into his foot; if a child has continual burning sensations in his legs, then that child is probably not making it up and attention seeking.

As you can tell, I am seething from the news Kate has been telling me. It is disgraceful and disgusting some of the medical advice she has been given, including “just ignore it”, “it’s growing pains”, and “it can’t be neuropathy, he’s too young”.

It is good advice for all persons to remember, don’t just take your doctor’s word each time. Ask for a second opinion if you don’t believe what they’ve said is the case. Go to another doctor in your town, or, if you have to, travel. Find out who is the best person for your symptoms who might be able to help, and demand to see them. Do not just accept defeat and that you’ll just have to put up with anything.

Be bold, be strong, and be well.

Janek xx

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1 Response so far »

  1. 1

    Jan said,

    I have been following your blog for a while. To me, this borders on medical malpractice. As if a young child would even KNOW what the symptoms of peripheral neuropathy are, enough to use the symptoms to gain attention. I must confess, I have to look it up on the Web myself. Perhaps he does not have peripheral neuropathy, (I thought a specialist diagnosed neuropathy already) but he certainly is experiencing severe symptoms of SOMETHING. It is the docs responsibility to figure it out so the child can get some relief. I would bring Lance to an ADULT ENDO who has some experience with neuropathy, as I strongly doubt a pediatric endo has seen enough cases to diagnose. You would stilll use the pedi endo for his other problems. You need to find the right specialist. I am rooting for you! Lance is a very brave little boy and I am very sorry he has to go through all thiis just to get TREATMENT, never mind the horrendous diagnosis he has to deal with! How these endos are treating you and Lance is beyond the pale!


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