The Hunger.

“When it is good, it is very very good…”

We are entering Week Four of pumping.

Things are progressing incredibly! Site changes are a breeze, with no infections to be seen and readings that are almost too good to be true. Hypos are nowhere near as savage and insidious as they once were.

Despite some initial hiccups, it feels like a lifetime ago when flexpens were responsible for dispensing Lance’s insulin. Today it’s all about five buttons and a Main Menu. It’s just so fantastic to have some of the worry taken out of diabetes.

“but when it is bad, it is horrid!”

As I am responsible for Lance’s blood sugar control and insulin administration, I’m the first to say that there have been some days (and very long nights) where I feel so desperately alone. When the pump beeps at me, and flashes messages indicating a problem, my heart jumps into my throat and I experience such overwhelming nausea, that, just for a nanosecond, I want to pack the whole thing up and hide it in my highest cupboard.

It’s about a week until our checkup with the paediatric endocrinologist. As we are still sorting out basal rates and a few other issues, we are fingerpricking up a storm. I want to be able to give the Doc the best representation of how life has been since we last saw each other a month ago, so I have carefully compiled all of Lance’s readings in his record book.

I’m yearning for unbroken sleep..At the moment, I’m averaging about four hours a night in total, and it’s nowhere NEAR enough.

Meanwhile, there is another issue that has me tearing my hair out.

Now, that Lance is receiving only Novorapid via his pump, he is stupendously hungry, all the time. I can NEVER satiate his hunger, no matter how much low GI, carb laden food I put in front of him. I can spend two hours in the kitchen preparing an evening meal, and upon completing every last morsel, he is STILL looking for something else.

I have tried halving his bolus amounts, thinking that perhaps I am being too heavy-handed with how many units of insulin I am permitting the pump to administer. It’s not that, as an hour later, he is sucking back water, and squirming around like he has several ant colonies scurrying all over his body.

We have a dog, and a cat. They have been wormed, but with the pump hoopla, I had forgotten to worm Lance. That was taken care of two weeks ago. So, no dearest Elder, he doesn’t have worms from our pets. Still, he craves carbohydrates only half an hour to an hour after a huge main meal. His blood sugar levels are hovering around the 5.5mmol/L-7mmol/L area about 80% of the time, (oh and believe me, for this, there is no adjective grandiose enough to explain how it feels to say “good riddance” to those horrid dips and spikes..) but I simply cannot keep his mind off what he can eat next!!!

(I have spoken to the Diabetes Educator about it, and she has suggested that it is possibly just the last part of his growth spurt, and to feed him what he wants, simply accounting for the extra carbohydrates he consumes by bolusing. )

A month ago, the first words Lance would utter were, “Good Morning, did you have lovely dreams?”

Now, he is plotting and planning what he can have for breakfast, and exclaiming how ravenous he is.

I am spending more time preparing food, then I am sleeping!

This is the only place where I can publically vent, as I can NEVER show Lance that I am privately frustrated with preparing feasts that would feed a small African village. It is starting to frustrate him also, as he is tired of brushing his teeth everytime he has to snack, and I can tell he feels remorseful that he has to continously ask me to find suitable snacks for him. As all food consumed has to be accounted for, he has to report to me so that I can administer the correct dosage. Sleep deprivation isn’t helping one single bit.

I have found myself having to bite my tongue when bedtime rolls along.

“Mum, if I brush my teeth again, can I please have a box of sultanas?”

Sigh.

The opportunity to actually speak to the endocrinologist and outline these concerns will be a such a relief. I know that the extra Novorapid and the out-of-whack basal levels are causing the hinge of my fridge to develop a squeak, but it will be SUCH a comfort to drive away from his office, knowing that the corrections he makes will reduce an appetite equivilent to the winner of Survivor.

Other than The Hunger, all things Diabetes are really looking up!

 

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2 Responses so far »

  1. 1

    Kezza said,

    As always it’s so good to hear that the pumping is going well and that Lance is happy and healthy but I hate to do this to you Kate, the hunger is just a part of growing up you’ll experience it in varying degrees all through his teenage years too if mine are anything to go by. I can remember getting home from school and eating an entire packet of dry biscuits with cheese, then polishing off the rest of the block of cheese just because I was still hungry, then two hours later I’d eat dinner, then help myself to as much again for seconds then whinge and moan to my Mum all night that I was huuuuuuuuuuungry!

    It’s miserable but it will pass, the best thing to do though is get Lance involved in the preparation so that eventually when he tells you he’s hungry you can tell him his legs aren’t painted on and that he can get up and make himself something! It worked for my Mum!

  2. 2

    Jan said,

    I am so happy things are going so well for Lance! Such wonderful BS numbers! Small price to pay for becoming a full time short order cook! I think you hit the nail on the head, though about basals possibly being a bit too high. Although a lot of preteens and teens eat constantly. I’ll bet endo adjusts basals downward a bit. I would check out a website called hungrygirl.com for your hungry boy. She also has a book. She has a lot of recipes that are lower fat, lower carb versions of restaurant and other treats. Some recipes you would not be able to use except occasionally, even though they are lower carb, they are not low carb. But she has a lot of good frappachinos, taco salads etc. a lot of her recipes are suitable and you get an awful lot of food for the carbs. Be forewarned, though, she does not use health food, just revamps recipes to make them as low carb, low cal as she can. Most are under the “Chew on This” section of her website.


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